A Kansas family is grieving the loss of their 13-year-old little girl who was brought into the world with an uncommon condition.
WICHITA, Kan. (KWCH) – A Kansas family is grieving the loss of their 13-year-old little girl who was brought into the world with an uncommon condition.
Scott and Gwen Hartley shared on their Facebook page,The Hartley Hooligans, that Lola spent away early Saturday morning. The family says her body was overwhelmed by consecutive infections just as other restorative inconveniences.
“She battled with everything in her to remain. She is truly the most grounded individual we have ever known. She could have left so often through the span of her 13.5 years, and each and every time, she decided to remain,” the family said. “We are totally crushed. She was a flat out warrior till her final gasp and last heartbeat. We are going to miss her so unfathomably much.”
The couple’s most seasoned little girl, Claire kicked the bucket at 17 years old in December 2018.
The sisters, brought into the world five years separated, had a neurological condition called Microcephaly. With the birth deformity, a youngster is brought into the world with a head that is a lot littler contrasted and infants of a similar age and sex.
In May, Gov. Kelly marked Senate Bill 28, “Claire and Lola’s Bill” into law. The bill permits individuals with perilous ailments to get CBD oil with a limited quantity of THC. The Hartleys campaigned for the bill in light of the fact that both of their girls utilized CBD to help with seizures.
The Hartley family says rather than blooms, dedications can be made to the Ronald McDonald House, 551 N Hillside St Suite 100, Wichita, KS 67214.